Wednesday, December 5, 2018

Spoke too soon!

So my pain level, even with morphine, has been gradually increasing since Saturday night, 12/1.  I've tried to take the morphine only when needed which is generally at night but the pain is creeping earlier and earlier into the evening and afternoon.

Today was actually a good day, my new normal, and I fell asleep in the recliner around 9:30 PM.  I woke up at close to midnight with some of the worse back pain I've ever experienced at around midnight. Seriously on a scale from 1-10, this would be an 11.5 or 12.  I was shaking/shivering uncontrollably and couldn't formulate complete sentences to tell Donna and Chey what I needed. I took some meds and moved from the recliner to the bed without any relief but with the hopes that the meds would prevail and I could drift off to sleep. It never really happened.

I finally emailed my oncologist around 5:15 in the morning to let her know what I was experiencing.  She was quick in getting back to me by mid-morning and seemed genuinely concerned. We added a new steroid, Dexamethasone, to my ever-growing list of prescriptions.  She's also going to try to move my chemo up from Thursday to Tuesday which is the same day I have my port-a-cath installed. I'm a little nervous about that since I know both treatments are a little tough and doubling down on a single day will also be more difficult, but I trust her judgement.

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